Index of Recommended OHC Readings
Alphabetic by Author/Organization
- AAP 1999 Physicians & IEP Process
- ACOG (American College of Obstetrics and Gynecology), 2007. Guidelines for Prenatal Screening.
- AAID (American Association on Intellectual and Developmental Disabilities), 2009. Terminology.
- Almendrala, 2014. Autism Facts. Huffington Post.
- Belkin, 2014. Gabe’s Care Map. Huffington Post.
- Bindels-de Heus et al 2013 Transition to Adult Care Profound IDD
- Brasington, 2007. What I Wish I Knew Then. J. of Genetic Counseling.
- Boehm, 2007. Having a Perfect Child. Obstetrics and Gynecology.
- Hacket 2009. Everybody Wins
- Henderson, 2006. Champions of Inclusion. Essay.
- Hirsch et al., 2000. Parents as Partners: Choosing a Pediatrician. Exceptional Parent Magazine.
- Jennings, 2010. Breathing Easy. Complex Child E. Magazine.
- The Massachusetts Down Syndrome Congress Parents’ First Call Program brochure
- Miller, 1995, Nobody’s Perfect (excerpt). Brookes Publishing Co.
- Moran et al., 2013 Aging and Down Syndrome. NDSS
- NDSS, 2006. Positive Steps for Social Inclusion. NDSS Newsletter.
- Scofield, 2006. The Turning Point. NDSC Newsletter.
- Senator, 2007. A Wanted Child. The Boston Globe.
- Shah et al 2013 MD Knowledge & Spec Ed IEP
- Sibling Support Project, What Siblings Want
- Skotko, 2009. Delivering a diagnosis of Down syndrome. Recommendations.
- Skotko et al., 2009.Postnatal Diagnosis of Down Syndrome: Synthesis of the Evidence on How Best to Deliver the News. Pediatrics.
- Skotko et al.,2009, Prenatal Diagnosis of Down Syndrome: How Best to Deliver the News. Am.J. of Medical Genetics.
- Skotko and Levine, 2006. What the Other Children Are Thinking. Am. J. of Medical Genetics.
- Snow, 2007. People First Language. Essay.
- Special Olympics Report 2005. The Health and Health Care of People with Intellectual Disabilities.
- Suskind, 2014. Reaching My Autistic Son Through Disney. NY Times
- Szabo, 2013. With Down Syndrome.: a Wrenching Choice. USA Today
- Tips for adult care from OHC families 2014
- Wallace, 2013. Smart Doctors, Ignorant Speech? SheKnows Parenting.
- WBUR, 2013. Caring for Kevin
- Wen, 2009. Seeking Grown Up Care. Boston Globe.
- Wilcox&Hoon 2013 Inclusion & MD Knowledge
- Zimmerman, Rachel “When Doctors Say This Won’t Hurt…” Common Health, 9/14/12