Families
- 2016 Research: Medical Cost of Raising a Child with DS
- 2011 Research: Siblings Perspectives and DS
- 2015 Research: Family Perspectives About DS
- 2011 Relationship Status Parents and ASD
Health Care
- Bindels-de Haus et al 2013 Transition to Adult Care Profound
- 2005 Health & Health Care Special and IDD Olympics Report
- Postnatal News: Down Syndrome
- 2017 Autism and Health Report
- 2013 Medical Comorbidities and Autism
- Caring for Kevin
- 2015 FCIC Physician’s Guide: Improving Communication for Patients Who Have IDD
- Moran 2013 Aging and Down Syndrome
- Dunlap 2018. Interacting with Individuals on the Autism Spectrum from American Nurse Today
- NPR 2018. Black and Latino Families Often Overlooked When It Comes To Autism
-
The Impact of COVID-19 on Individuals with IDD: Clinical and Scientific Priorities. Am J. of Psych. Aug 28, 2020 (for more learning resources see also COVID-19 link on this website.)
Education
- AAP 1999 Physicians & IEP Process
- Shah et al 2013 MD Knowledge & Spec Ed IEP
- Wilcox & Hoon 2013 Inclusion & MD Knowledge
- Hacket 2009. Everybody Wins
Genetic Testing
- American College of Obstetrics and Gynecology: Prenatal Screening Tests
- Prenatal Testing: How Best to Deliver the News. Research 2009
- Delivering a Diagnosis of DS: short list for professionals
- Down Syndrome, Prenatal Testing. Abortion Rates and Complicated National Politics. Ruth Graham 2018
- MDSC Parents’ First Call Program brochure
Language
- IDD Definition (from the American Association on Intellectual and Developmental Disabilities or AAIDD)